Epidermolysis bullosa is a rare skin condition that’s usually inherited. It makes the skin incredibly thin and brittle. People born with this condition are often called “butterfly children” because ...

Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

Seven-year-old Hassan was dying. An infection had destroyed most of his skin, he was too weak to eat, and he was in agony. Doctors in Germany were planning to provide palliative care — keeping Hassan ...

A gene-therapy gel designed to treat the rare genetic condition "butterfly disease" showed success in a late-stage trial. When you purchase through links on our site, we may earn an affiliate ...

Disease name: Epidermolysis bullosa (EB), or "butterfly disease" Affected populations: Butterfly disease is estimated to affect around 1 in 50,000 children, if you count all subtypes of the disease ...